Things I Would Want If I Got Dementia

Posted by McKenna Burr on Apr 27, 2016

In Alzheimer's & Dementia, Main



We found an awesome article talking about handling a loved one with dementia. They talk about the situation if they get dementia how they would want to be treated. This is a good reminder for those caring for one with dementia and how to give them the best that you can. The author created a wish list that she would want her family to follow if she ever had dementia, the list is below. 

Rules for a Good Life: 

  • If I get dementia, I want my friends and family to embrace my reality. If I think my spouse is still alive, or if I think we’re visiting my parents for dinner, let me believe those things. I’ll be much happier for it.
  • If I get dementia, I still want to enjoy the things that I’ve always enjoyed. Help me find a way to exercise, read and visit with friends.
  • If I get dementia, and I become agitated, take the time to figure out what is bothering me.
  • If I get dementia, make sure that there are plenty of snacks for me in the house. Even now, if I don’t eat I get angry, and if I have dementia, I may have trouble explaining what I need.
  • If I get dementia, don’t feel guilty if you cannot care for me 24 hours a day, 7 days a week. It’s not your fault, and you’ve done your best. Find someone who can help you, or choose a great new place for me to live.
  • If I get dementia, don’t act frustrated if I mix up names, events or places. Take a deep breath. It’s not my fault.
  • If I get dementia, don’t exclude me from parties and family gatherings.
  • If I get dementia, know that I still like receiving hugs or handshakes.
  • If I get dementia, I don’t want to be treated like a child. Talk to me like the adult that I am.
  • If I get dementia, remember that I am still the person you know and love.

Caring for someone with dementia can be emotionally, physically and mentally exhausting. Frustrations can start to build when there is a miscommunication between the two of you. Just remember that this is your mom or dad and to take a second to yourself to calm down. Dementia can change a person but they are still the person that has loved and cared for you and now it is your turn to do the same.

 This information came from this article. To read more, click here.